If there’s anything I wish people understood about SMA it is the idea that I am not dying from it. Lately there’s been a lot of controversy in the SMA world with the story of Jerika Bolen, who at just 14-years-old has decided to end her life with SMA Type 2. While a lot of the arguments stem around the right to die, another significant source of controversy is stemming from the media making it sound like the disease is a death sentence. Even I say in my presentations that SMA can be life-ending for many. BUT, that doesn’t mean I am saying that the disease itself is what kills you. It’s secondary things that unfortunately sometimes SMA bodies can’t endure. Oftentimes...
Read MoreElements for Taking Care of Yourself Learning To Say No & To Let Go These two concepts are the most important for taking care of yourself, but also the most difficult to actually put into practice. They are definitely not something you will learn and master overnight, but once you do and truly grasp that it is OK to say no and to let go of something, you will feel free. Trust me, I’ve been there. Saying no to people can be really hard for some people. It’s especially hard for us people pleasers and over-achievers. Yes, I admit that I was once one of those people. Well, still kind of am. I am just a lot better about it. People like this have a hard time saying...
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