Posts made in October, 2015

Dear Julianna

Posted by on Oct 29, 2015 in Blog | 0 comments

This is an open letter to the little girl from CNN who her parents say has chosen going to Heaven over the hospital the next time she gets sick. The article is available at: Dear Julianna, You are beautiful, sweet, funny, witty and a little sarcastic. A lot like me. Also like me you have a form of muscular dystrophy. And also like me, you’re experiencing some of the sometimes not-so-fun things that your disability causes like weakness and having to wear your BiPap A LOT and doing respiratory...

Read More